The global leader in facilitating treatment research for Huntington disease – the Huntington Study Group (HSG) – needed help launching an ambitious cross-sector initiative to improve quality of care, access to care, and patient and family outreach.
To best facilitate the launch, we focused on three key efforts: 1) Conducting a national survey and interviews with patients, care providers, clinical researchers and health system leaders, 2) Analyzing leading clinical and population care models, and 3) Delivering a global market analysis to identify key pipelines, partners and funding trends.
As a result, the Huntington disease patient journey became clear, helping HSG and their partners understand how to effectively improve the patient and family experience. With this information in hand, HSG is positioned for strategic partnerships with the research community, patient advocates, as well as Federal, commercial and non-profit organizations.
CLIENT NEED
The Huntington Study Group (HSG) is a global leader in facilitating high quality clinical research for advancing treatment for Huntington Disease (HD). HSG needed help conceptualizing and launching the Huntington Disease Care Improvement Project (HDCIP), an ambitious cross-sector initiative for improving quality of care, access to care, and outreach to HD patients and families.
WHAT WE DID